Baby Cameron is 10 months old and needs a vital surgery.
BUFFALO, N.Y. — Cameron Casacci’s medical issues happened shortly after birth on Sept. 11, 2024.
His parents, Brad and Alyssa Casacci, said he had a stroke on the left side of his brain and he now has seizures.
“Our epileptologist here in Buffalo said that Cam has what they call, medication resistant epilepsy, which means that the epilepsy is just not controlled by these medications. So he recommended a very drastic extreme surgery known as a hemispherectomy, where they go in and basically disconnect the left hemisphere of Cam’s brain from the right hemisphere of his brain in hopes of bringing him seizure freedom.”
The parents are prepared for the infant to have the risky surgery.
However, they said no specialists in this area can do it. They have an appointment with a specialist in Rochester, but it’s weeks away.
They have consulted and met with a specialist at UPMC in Pittsburgh who is prepared to do the surgery.
They showed 2 On Your Side denial letters to pay for the surgery from Independent Health.
“This is not a broken arm, it’s a kid’s brain,” said Brad.
Appeals have also been denied.
“The first denial that we got from our insurance actually list providers who can do the surgery. They listed Cam’s neurosurgeon here as someone who can do it. She does not do the surgery,” Alyssa said.
The surgery and other costs are expected to top $500,000.
Source: Infant's life-changing surgery is denied as parents battle insurance hurdles
